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business meeting 7/08
There was a very enthusiastic AGM which followed the tea/coffee break. A number of original ideas came out of the meeting which we will be following up.
Jackie Thomas, one of the PSC-Support Trustees, confirmed that she has had PSC-Support added to the Just Giving website.
Now members are able to set up sponsorship pages for events and raise money for PSC through the Just Giving website. People can make one-off donations through the Just Giving Website and it allows for regular giving, too. Both of these can be tax-free. It is a major step forward.
Tony Rundle (webmaster for www.psc-support.co.uk) has added links to the Just Giving web-site from our PSC Support website.
Jackie mentioned two major fund-raising activities for PSC Support in the next year:
The Aberystwyth 10k run in December 2008, and the London Marathon 2009.
William Williams updated us on our patron, Dennis O‘Neill. Despite Dennis O‘Neill‘s busy schedule, William hopes to be able to enlist his support to raise awareness of PSC Support in the media.
Ideas generated by the attendees in the Meeting
~ Raising Awareness and Fundraising
Jackie mentioned two major fund-
William Williams updated us on our patron, Dennis O‘Neill. Despite Dennis O‘Neill‘s busy schedule, William hopes to be able to enlist his support to raise awareness of PSC Support in the media.
Ideas generated by the attendees in the Meeting
~ Raising Awareness and Fundraising
1. It was suggested that we include PSC SUPPORT details in the Blood Sample Request to PSCers from the Cambridge team. Martine Walmsley will follow this up.
2. Ivor Sweigler has a supply of business cards available for members to give to their consultants. They are due to be reprinted soon, and will be reprinted with the new logo. Richard Hall suggested that we contact the Association of Liver Nurses and provide them with information about PSC SUPPORT. He has found them to be very helpful in the past (often more so than consultants for things like this). Ivor Sweigler will contact Richard Hall with details.
2. Ivor Sweigler has a supply of business cards available for members to give to their consultants. They are due to be reprinted soon, and will be reprinted with the new logo. Richard Hall suggested that we contact the Association of Liver Nurses and provide them with information about PSC SUPPORT. He has found them to be very helpful in the past (often more so than consultants for things like this). Ivor Sweigler will contact Richard Hall with details.
3. Martine Walmsley will contact Richard Hall regarding updating the current PSC Poster.
4. PSC SUPPORT is considering the reintroduction of a New Members‘ Pack. Attendees felt that it was important to include personal stories in this pack. This should also include stories from partners and family members as well as PSCers themselves. Information should be provided in layman‘s terms that is basic and easy to understand. Martine Walmsley agreed to create the new pack.
4. PSC SUPPORT is considering the reintroduction of a New Members‘ Pack. Attendees felt that it was important to include personal stories in this pack. This should also include stories from partners and family members as well as PSCers themselves. Information should be provided in layman‘s terms that is basic and easy to understand. Martine Walmsley agreed to create the new pack.
5. Martin Boughen (pictured below) reported great success with his sponsorship campaign. One of the things he did when fund-raising, was to show photos of his son, and was frank about the effects of the disease and his suffering ~ a personal story and hard-hitting facts about the reality of the disease worked for him when asking people to give their money to our charity.