© 2004 All Rights Reserved
Registered charity no.
1115615
Tel : 020 8693 8789
1115615
Tel : 020 8693 8789
helping people suffering from Primary Sclerosing Cholangitis
editorial - march 08
Dr. Roger Chapman’s Research
Dr. Chapman's important genome project, involving the gathering of DNA from 1000 PSC ers, is still going ahead. There are problems with the funding, which is supposed to be organised through Cambridge (Addenbrooke’s). The Oslo group are going to come to the rescue, and are likely to fund doctors and nurses to organise sample collection, and the database. Our own contribution, therefore, increases in importance.
Many thanks to all our members who have provided their details for participation. We are continuing to collect names and contact details of anyone wishing to take part. The DNA will be gathered by participant providing a blood sample via their GP ~ details on when to provide samples will be confirmed later.
We are well on the way to raising the required £10,000 to take DNA samples from 1000 volunteers, but funds are desperately needed. Please be generous to support this cause.
New Subscription Rates
Members are reminded that the annual subscription is now £15. Life membership will no longer be offered. The new rate for overseas members is US$40, or local equivalent. This adjustment reflects the increase in postal rates.
Those members who pay by Standing Order should adjust the amount at their bank. We like to receive subscriptions at the beginning of the year. If that isn’t possible, please increase your subscription next time you make your annual payment. Those on benefits do not need to pay subs, and you should not be shy about telling us.
Subscriptions are important to us. We want to cover all our running costs from subscriptions, so that all donations go directly to research. Please note that the newsletter, which contains a lot of
Dr. Chapman's important genome project, involving the gathering of DNA from 1000 PSC ers, is still going ahead. There are problems with the funding, which is supposed to be organised through Cambridge (Addenbrooke’s). The Oslo group are going to come to the rescue, and are likely to fund doctors and nurses to organise sample collection, and the database. Our own contribution, therefore, increases in importance.
Many thanks to all our members who have provided their details for participation. We are continuing to collect names and contact details of anyone wishing to take part. The DNA will be gathered by participant providing a blood sample via their GP ~ details on when to provide samples will be confirmed later.
We are well on the way to raising the required £10,000 to take DNA samples from 1000 volunteers, but funds are desperately needed. Please be generous to support this cause.
New Subscription Rates
Members are reminded that the annual subscription is now £15. Life membership will no longer be offered. The new rate for overseas members is US$40, or local equivalent. This adjustment reflects the increase in postal rates.
Those members who pay by Standing Order should adjust the amount at their bank. We like to receive subscriptions at the beginning of the year. If that isn’t possible, please increase your subscription next time you make your annual payment. Those on benefits do not need to pay subs, and you should not be shy about telling us.
Subscriptions are important to us. We want to cover all our running costs from subscriptions, so that all donations go directly to research. Please note that the newsletter, which contains a lot of
informative material which it is not always possible to include on this site, will not be sent to members who do not renew, on the assumption that they no longer wish to be contacted.
Any unpaid subscriptions should be paid a.s.a.p. please.
British Liver Trust
The British Liver Trust is continuing its policy of strengthening its ties with Patient Support Groups.
Richard Hall has taken over Sara Cole’s job as the BLT’s Support Group Co-ordinator, and is touring the country. I was very happy to meet him in London in March ~ I think we can look forward to some constructive work from him.
A call from Amir
In January, we had a surprise telephone call from Aamir Ahmed in Pakistan. He’s our only member from the developing nations. We did have a member from China, a young woman with advanced PSC who needed a liver transplant, which her family could not afford. She never received our newsletters, and we've lost contact.
Aamir comes from the city of Wah Cantt (30 miles northwest of Islamabad), which is a unique multi-ethnic city where there is 100% literacy. He’s receiving very good treatment, and is well cared for. It’s costing his family a small fortune. He tells me that medicines are five times more expensive in Pakistan than in India. It is hoped that he’s going to write an article or two about healthcare in Pakistan, and treatment for IBD and PSC.
Norman Scholey
One of our older members, Norman reached 80 in February.
For some of us, it seems that PSC is a recipe for old age ! In honour of his birthday, family and friends donated £100 to PSC SUPPORT ~ all covered by gift aid.
Any unpaid subscriptions should be paid a.s.a.p. please.
British Liver Trust
The British Liver Trust is continuing its policy of strengthening its ties with Patient Support Groups.
Richard Hall has taken over Sara Cole’s job as the BLT’s Support Group Co-
A call from Amir
In January, we had a surprise telephone call from Aamir Ahmed in Pakistan. He’s our only member from the developing nations. We did have a member from China, a young woman with advanced PSC who needed a liver transplant, which her family could not afford. She never received our newsletters, and we've lost contact.
Aamir comes from the city of Wah Cantt (30 miles northwest of Islamabad), which is a unique multi-
Norman Scholey
One of our older members, Norman reached 80 in February.
For some of us, it seems that PSC is a recipe for old age ! In honour of his birthday, family and friends donated £100 to PSC SUPPORT ~ all covered by gift aid.
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